A disease that turns your muscle into bone in a slow march toward paralysis might sound like a sci-fi nightmare, but it’s reality for 17-year-old Seanie Nammock. The London teen was diagnosed a few years ago with fibrodysplasia ossificans progressiva (FOP), which is slowly turning her muscles and tendons into bone — even a small knock or bump can cause a flare-up.
The rare, incurable genetic disorder’s progress now prevents her from raising her arms high enough to brush her hair (she has a special comb) or apply make-up (she uses barbecue tongs). She insists it’s not so bad, crediting her friends and family for helping her cope. Now Nammock’s sister, Sinead, is climbing Mount Kilimanjaro to raise money for those fighting the uphill battle against FOP.
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